Braliem Jousc, el verde. 15 años de periodismo cultural en Guatemala. Es el responsable de la agenda cultural diaria más completa del país, con recordatorios constantes de arte, cultura y ocio.

jueves, 19 de mayo de 2011

AIDA... searching for a light

Ella es Aída, es mi cuata y está decidida a someterse a un tratamiento que la ayude en su lucha contra la esclerosis múltiple. Toda donación es bienvenida antes del 31 de mayo a través de la siguiente página.

Family and friends of Aida Palencia are united to raise money to help paying for medical costs and related expenses. Please show support! before May 31.

About Aida
I am 28 years old and I have been diagnosed with MS, Multiple Sclerosis.
At the time I had absolutely no idea what MS was. All I knew was that I was having such headaches, I fainted several times, I was losing my balance from time to time, had vertigo and did not feel my legs causing me to fell on the floor.

I had done lots of doctor’s appointments and no one could have diagnosed what I really had, some said that I was suffering from depression or that I had an ear infection even though I was seeing by a Neurologist. It was not until my mom suggested having a MRI done and finally, after three valuable years, I was diagnosed with MS.

So what is Multiple Sclerosis? It’s a chronic, disabling autoimmune disease that attacks your central nervous system, leading to relapses that can include paralysis, blindness, and loss of speech. The MRI shows several spots on the brain and those spots are actually legions on the brain caused by your immune system attacking myelin, which is a fatty material that protects nerve fibers.

MS has no cure. The only hope is to use medicine to prolong time between relapses, treat them with medication, and figure out a way to deal with persistent fatigue. There are four kinds of MS, which all have complicated, technical definitions. I was diagnosed with relapsing-remitting MS, meaning that I would experience relapses from time to time but since none of the medication had been successful now I have been diagnosed with Progressive MS, which means my condition it is irreversible and gradually will worsen over time.

For me thinking about a future it is kind of hard as this disease is so unpredictable. I am terrified that my next relapse will leave me blind or paralyzed.

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